Hello All!
I have found some additional information that answers some of the questions that I found myself asking when I first began this blog. Some of the questions that were answered were: What type of car seat is recommended for safe transportation of their precious
child and what types of clothing should the parents buy since their child is very
fragile. I found the following information at this website http://www.oif.org/site/PageServer?pagename=InfChild. I so that this website recommended a specific brand for car seats. I found that that the car seats they recommended we for children that were over the weight of twenty pounds, and they could accommodate children up to one hundred- twenty pounds. I think that the website should have informed the reader that the car seat that this website provides are for the weight limit that I have just previously mention. Different aides with ensuring the comfort and safety of your child are available at this website http://www.snugseat.com/Products.aspx?GroupID=GROUP263.
Hopefully later on this week I will be able to answer additional questions that I addressed on this website. I will try to locate a blog or parent forum where they communicate with other parents. Until next time.....
Rebecca,
ReplyDeleteI thought the questions you posted were really good. Those are probably ones I wouldn't think of right away. I read the website you posted and found it interesting. I liked reading that to care for the child it is just as caring for any other baby. I think that is comforting for parents to read, and I think with any child each parent is going to be extra careful whether their baby has a disability or not. I also looked online and came across a website similar to the one you found. It has information on car seats, strollers, handling, clothing and bathing. http://bones.emedtv.com/osteogenesis-imperfecta/children-with-osteogenesis-imperfecta.html
I hope this helps!
Can't wait to read more.
Libby
Hey Libby,
DeleteThanks for the useful website! I looked at a particular section that addressed the topic about teeth. I was hoping that they would have included some information about what type of foods your children should eat or what type of food your children should aviod if their enamel easily deteriorates. I will continue to look for a blog or factual information that contains the information that I need.
Rebecca,
ReplyDeleteYou may want to contact Dr Ellen Lynch. She is an expert in this area and a grandmother of children with this disorder. vc
Why thank you Dr. Carr.
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