I was trying to find some information on what types of foods individuals with OI should eat and what foods they should avoid, and I came across this very insightful website that addressed some things that I have not even thought about. The website that I found the following information on can be located at http://www.oif.org/site/PageServer?pagename=Nutrition
I found out about how individuals with OI should maintain healthy weight through a good diet and exercise. I find that this could be a very challenging task for individuals that suffer from OI because with their bones being as fragile as they are it would be very difficult for them to exercise like someone who does not suffer from OI. Exercising or even yoga requires a lot of body movement and and bending and if someone is not careful this activity could be the result of a broken bone. Even a lot of exercise can become very dangerous for an individual that suffers from OI because too much weigh on their bones could cause to other health related issues other than those that are associated with OI.
There was other useful information that could be found on this website but I wanted to give you all the opportunity to see the information for yourselves. Until next time...
Monday, April 23, 2012
Monday, April 16, 2012
Hello All!
I have found some additional information that answers some of the questions that I found myself asking when I first began this blog. Some of the questions that were answered were: What type of car seat is recommended for safe transportation of their precious child and what types of clothing should the parents buy since their child is very fragile. I found the following information at this website http://www.oif.org/site/PageServer?pagename=InfChild. I so that this website recommended a specific brand for car seats. I found that that the car seats they recommended we for children that were over the weight of twenty pounds, and they could accommodate children up to one hundred- twenty pounds. I think that the website should have informed the reader that the car seat that this website provides are for the weight limit that I have just previously mention. Different aides with ensuring the comfort and safety of your child are available at this website http://www.snugseat.com/Products.aspx?GroupID=GROUP263.
Hopefully later on this week I will be able to answer additional questions that I addressed on this website. I will try to locate a blog or parent forum where they communicate with other parents. Until next time.....
I have found some additional information that answers some of the questions that I found myself asking when I first began this blog. Some of the questions that were answered were: What type of car seat is recommended for safe transportation of their precious child and what types of clothing should the parents buy since their child is very fragile. I found the following information at this website http://www.oif.org/site/PageServer?pagename=InfChild. I so that this website recommended a specific brand for car seats. I found that that the car seats they recommended we for children that were over the weight of twenty pounds, and they could accommodate children up to one hundred- twenty pounds. I think that the website should have informed the reader that the car seat that this website provides are for the weight limit that I have just previously mention. Different aides with ensuring the comfort and safety of your child are available at this website http://www.snugseat.com/Products.aspx?GroupID=GROUP263.
Hopefully later on this week I will be able to answer additional questions that I addressed on this website. I will try to locate a blog or parent forum where they communicate with other parents. Until next time.....
Monday, April 2, 2012
Week One (Oseteogenesis Imperfecta)
Hello!
Over the next couple of weeks I will pose questions that I would like to inquire about Osteogenesis Imperfecta and how it affects individuals and their families. I found this link by googling Osteogenesis Imperfecta and this is the the best link that I could find in order to describe Osteogenesis Imperrfecta. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002540/
As I was reading about Osteogensis Imperfecta I asked myself several questions; questions that I would like to know if I were in the shoes of parents would be expecting an angel with this crippling disease. Some of the questions that I found myself asking were: I wonder how families with a child that was born with Osteogenesis Imperfecta prepare for the arrival of their angel? What is the safest or recommended birthing procedure? What type of car seat is recommended for safe transportation of their precious child? What do parents do in order to drive their child safely to doctor appointments? What types of clothing should the parents buy since their child is very fragile? As the child gets older, what types of food are they allowed to eat or how is their food prepared in order to reduce broken teeth? Are there parenting classes that teaches the parents the best and safest way to handle their child? If there are any older siblings how do the parents prepare to tell them about how to handle or help care for their brother or sister?
I did some research and I found that women who are carrying a baby that has been diagnosed with Osteogenesis Imperfecta should be seen by a doctor that has experience delivering babies with serious medical conditions or they should be seen by a doctor that feels competent enough to perform the procedure. I would think that since there are not many cases of Osteogensis Imperfecta many doctors would not be experienced with the birthing procedure of a child born with that disease compared to a child whose mother suffers from preeclampsia.
Hopefully when I return later on this week I can find more information on some of the questions that I had while I was thinking about this blog. Until next time, live, love, and be happy <3
Over the next couple of weeks I will pose questions that I would like to inquire about Osteogenesis Imperfecta and how it affects individuals and their families. I found this link by googling Osteogenesis Imperfecta and this is the the best link that I could find in order to describe Osteogenesis Imperrfecta. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002540/
As I was reading about Osteogensis Imperfecta I asked myself several questions; questions that I would like to know if I were in the shoes of parents would be expecting an angel with this crippling disease. Some of the questions that I found myself asking were: I wonder how families with a child that was born with Osteogenesis Imperfecta prepare for the arrival of their angel? What is the safest or recommended birthing procedure? What type of car seat is recommended for safe transportation of their precious child? What do parents do in order to drive their child safely to doctor appointments? What types of clothing should the parents buy since their child is very fragile? As the child gets older, what types of food are they allowed to eat or how is their food prepared in order to reduce broken teeth? Are there parenting classes that teaches the parents the best and safest way to handle their child? If there are any older siblings how do the parents prepare to tell them about how to handle or help care for their brother or sister?
I did some research and I found that women who are carrying a baby that has been diagnosed with Osteogenesis Imperfecta should be seen by a doctor that has experience delivering babies with serious medical conditions or they should be seen by a doctor that feels competent enough to perform the procedure. I would think that since there are not many cases of Osteogensis Imperfecta many doctors would not be experienced with the birthing procedure of a child born with that disease compared to a child whose mother suffers from preeclampsia.
Hopefully when I return later on this week I can find more information on some of the questions that I had while I was thinking about this blog. Until next time, live, love, and be happy <3
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